Danish

Danish Rheuma Biobank

The Danish Rheuma Biobank holds biological material such as blood and tissue samples from thousands of Danish patients with inflammatory arthritis. The aim is to have personalized medical treatment early on in the disease pathway.  Over 3400 blood packages from more than 2000 individuals are collected in this clinical biobank.

Key facts

Name of the connected EIT Health partner:Lasse Boding
Number of individuals:Total 2,133
Biobank confirmed willingness to provide samples/data for EIT Health studies:Yes
Contact person(s) and contact data
(e-mail address, tel. no) for access purposes:
Estrid Høgdall
Estrid.hoegdall@regionh.dk
Number of samples:Total 3,450
Sample types:Blood packages
Omics data:Not available
Website:Danish Rheuma Biobank

General information

Type of biobank:Clinical.
If longitudinal the frequency:Yes.
Link to central portal to seek samples and data:Danish Biobank Register www.biobanks.dk
Broad consent:Yes.
Option to recall donors:No.
Option to recall family members:No.

Quality management system:

Link to operational procedures:Nationwide SOPs.
Storage:Controlled storage.
Compliance with international standards:Align with international guidelines.
Current ISO certificates:Not available.

Data:

Clinical data linked to samples:Data on samples such as diagnosis codes and primary organ.
Omics data available:Not available.
Data standards:Not available.
Data security rules:Not available.

Biobank related service:

Research support, what type of expertise?:Knowledge about research, guidance on extractions and cohort selection.
Core facility services; what type? Link?:Not available.
Queries from national health registers:Capacity to perform analysis.

IP:

IP rules, what is negotiable?:Not available.
Requirements to study results (access etc.):Not available.
Participant’s right to the information:Not available.
Number of access contracts with industry:Not available.
Statistics about access if available:Not available.

The Registers and Biobanks in Transition” strategic initiative is funded by EIT Health