Danish

Danish Twin Register

The Danish Twin Register is the oldest national twin register in the world, with information about twins born in Denmark over the last 140+ years. The Registry contains information about more than 86,000 twin pairs, as well as data from a number of triplets and quadruplets. Omics data are available from selected samples from up to 1200 individuals.

Key facts

Name of the connected EIT Health partner:Lasse Boding
Number of individuals:Total 18,998
Biobank confirmed willingness to provide samples/data for EIT Health studies:Yes, we are willing to collaborate and provide samples, with an internal representative
Contact person(s) and contact data (e-mail address, tel. no) for access purposes:Jonas Mengel-From, jmengel-from@health.sdu.dk Biobank leader of the Danske Twin Register
Number of samples:Total 3,450
– total 72,174
– 13,468 Buffy coat
– 13,247 DNA
– 11,372 Filter Paper
– 14,775 Plasma
– 4,011 RNA
– 13,854 Serum
– 1,447 Urine
Sample types:Blood packages
Omics data:Selected samples from up to 1200 individuals
Website:Danish Twin Register

General information

Type of biobank:Population-based studies of twins.
If longitudinal the frequency:Selected cohorts have repeated samples, longitudinal with up to 12 years of repeated sampling.
Link to central portal to seek samples and data:Danish Biobank Register www.biobanks.dk
Broad consent:Contact Danish twin register. Currently consents are available dependent on health and age.
Option to recall donors:Yes.
Option to recall family members:Yes.

Biobank access procedure:

Major terms for access:Please see: https://www.sdu.dk/en/
Om_SDU/Institutter_centre/
Ist_sundhedstjenesteforsk/Centre/DTR.aspx
Ethical and legal compliance:Danish law
Speed and reliability of delivery:Not available.
Pricing:Not available.

Quality management system:

Link to operational procedures:Not available.
Storage:Samples are handled and stored according to standard procedures.
Compliance with international standards:Not available.
Current ISO certificates:Not available.

Data:

Clinical data linked to samples:Samples can be linked to clinical data in registries. Questions of health and disease are available from assessments by request.
Data standards:Data are handled and secured according to internal procedures.
Data security rules:Data are handled and secured according to ownership agreements.

Biobank related service:

Research support, what type of expertise?:Data managers, statisticians, laboratory staff.
Core facility services; what type? Link?:Storage and distribution. Some analytical expertise is available through Odense University Hospital.
Queries from national health registers:Not available.

IP:

IP rules, what is negotiable?:Not available.
Requirements to study results (access etc.):Not available.
Participant’s right to the information:Not available.
Number of access contracts with industry:Mainly we are working with academic and hospital partners, but we have previously worked with industrial partners.
Statistics about access if available:Not available.

The "Registers and Biobanks in Transition” strategic initiative is funded by EIT Health