Swedish

Uppsala Biobank

Uppsala Biobank is a collaborative facility serving both Uppsala University and Uppsala University Hospital.  The biobank houses several million samples of all types, including biological material from around 500,000 individuals. Collections include both research samples (disease based, pediatric, case-control, longitudinal, population based etc.) and samples intended for medical care and treatment.

Key facts

Number of individuals:Total ~500,000
Biobank confirmed willingness to provide samples/data for EIT Health studies:Yes
Contact person(s) and contact data
(e-mail address, tel. no) for access purposes:
www.uppsalabiobank.uu.se
info@uppsalabiobank.uu.se
Number of samples:Several million samples
Sample type:All different kinds of sample types.
Website:Uppsala Biobank

 

General information

Type of biobank:Collections include both research samples (disease based, pediatric, case-control, longitudinal, population based etc) and samples intended for medical care and treatment.
If longitudinal the frequency:Can only be answered per sample collection.
Link to central portal to seek samples and data:Uppsala Biobank does not have a search portal for samples and data.List of research sample collections:   https://www.uppsalabiobank.uu.se/sv/component/
edocman/forskningsprovsamlingar-uppsala-biobank
Sample collections saved for healthcare purposes can also be available for research.– contact Uppsala biobank, info@uppsalabiobank.uu.se
Broad consent:An approval from the Ethics Review Authority in Sweden is required.
Option to recall donors:Generally, NO, but can be possible for some sample collections.
Option to recall family members:Generally, NO, but can be possible for some sample collections.

Biobank access procedure:

Major terms for access:Samples can be made available to research groups and companies after a decision from the ethical review authority and after application to biobank custodian.
Ethical and legal compliance: To get access to samples from a collection or a cohort collected by researchers or research groups, applicant also must obtain permission from the group or committee granting access to samples.
Speed and reliability of delivery:Not available.
Pricing:Not available.

Quality management system:

Link to operational procedure:Not available.
Storage:Not available.
Compliance with international standards:ISO 15189.
Current ISO certificates:Implementing ISO 20387.

Data:

Clinical data linked to samples:Differs between sample collections.
Data standards:Not available.
Data security rules:Not available.

Biobank related service:

Research support, what type of expertise?:Uppsala Biobank offers services within regulatory,
IT-support and laboratory services and analyses.
https://www.uppsalabiobank.uu.se/sv/
kontaktaoss/vart-ska-jag-vaenda-mig

Laboratory services: http://www.ucr.uu.se/sv/tjanster/ucr-laboratory   IT/LIMS: UBITS@uppsalabiobank.uu.se
Regulatory: info@uppsalabiobank.uu.se
Core facility services; what type? Link?:Not available.
Queries from national health registers:Not available.
Links to the model contract and MTA:https://biobanksverige.se/research/useful-resources/application-form-selector/

IP:

IP rules, what is negotiable?:Must be handled per sample collection.
Requirements to study results (access etc.):Must be handled per sample collection.
Participant’s right to the information:Must be handled per sample collection.

The "Registers and Biobanks in Transition” strategic initiative is funded by EIT Health