Biobanks & Registers Strategic Initiative

Summary

Biobanks and health data registers can give unparalleled insights, paving the way for new treatments and medical products. Biobanks and registers are goldmines, but access can be perceived complicated for industry and startups. Moreover, the biobanks and health data register ecosystem is highly fragmented since there is not consensus on management of data and sample within Europe and even within the same region or country.

Through the strategic initiative “Biobanks and Registers in Transition” strategic initiative, EIT Health aims to accelerate the use of biobanks and health data registries including simplifying access, in order to gain improvements for R&D and to implement new innovations faster into the market.

Part of this will be information packages providing detailed overview over resources and access rules of different countries in Europe and a yearly matchmaking conference in the Fall that will support partners in their application. 

Registries and Biobanks in Transition

This strategic EIT Health initiative works to accelerate the use of big data, biobanks and quality registries in development of new healthcare solutions. The initiative is especially focused on helping to get access to biobanks and registries in Europe, which are goldmines of data but can be perceived as difficult to access.

Team

Project Manager: Ulrika Zagai, PhD

The initiative’s steering group consists of:

  • Per Matsson (Chairman), ThermoFisher Scientific
  • Eva Tiensuu Jansson, Uppsala University
  • Anders Gustafsson, Karolinska Institutet
  • Lili Milani, University of Tartu
  • Henning Langberg, Copenhagen Healthtech cluster
  • Gavyn Edmunds, Region Skåne

The partners

  • EIT Health Belgium – The Nerdelands – Luxemburg – Israel
  • BBMRI-ERIC

The initiative

The strategic initiative RABBIT seeks to address several issues, with the overall goal of simplifying access to biobanks and quality registries in order to gain improvements for R&D and to implement new innovations faster into the market.

The initiative is an outcome of discussions in the 2018 EIT Health ThinkTank Round Table, in particular one held 13 August 2018 in Stockholm, during which it was noted that there are different rules in different countries impacting how biobanks and registries act today. Based on this discussion EIT Health chose to address the situation of access to registries and biobanks, starting with a focus on the situation in Sweden, Estonia and Denmark initially. In 2020, this initiative has already expanded to other European regions that will continue scaling-up the project in the coming years.

The initiative focuses on industry needs, setting up dialogues with industry representatives, mapping their needs, and establishing ways of providing information, encouraging use of biobanks, and strengthening collaboration between industry and biobanks/registries. We foresee that the strategic activity will support the EIT Health Partners by saving time and simplifying access to biobanks and quality registries.

 

Impact

For EIT Health Partners and other healthcare innovators:

  • Fragmented information from biobanks and registries made easy to find on one site.
  • Increased quality of innovations using big data.

For Biobanks:

  • Increased exposure.
  • Knowledge of industry needs.
  • Bringing industry closer to biobanks.

 

External Partners:

Why participate in the Biobanks initiative?

EIT Health Scandinavia`s biobanks and registers in transition (RABBIT) strategic initiative supports its Partners to discover those Partner-owned biobanks and registers that best match their needs, develop effective project proposals, and matchmake with potential new collaborators. Through this initiative you will benefit from:

  • The Biobanks & Registers Information Hub. A one-stop portal which saves your time by having all the needed information in one place.
  • Key facts about theavailable collections and their contents. Increasing the quality of your project proposals.
  • Funding opportunities. To support you develop your proposals and bring them to the market.
  • Access guides to biobanks and registers. Facilitating you navigate the various legislations and reqirements to obtain samples and data.
  • Essential facts on legal, regulatory & quality requirements. Helping you when developing collaborations and proposals

Want to know more? Welcome to contact us!

Ulrika Zagai, PhD
Project Manager, Registers & Biobanks in Transition 2
+46 155 19 22
ulrika.zagai@eithealth.eu

The "Registers and Biobanks in Transition” strategic initiative is funded by EIT Health